Alberta Neurofibromatosis Association
September 06, 2010, 12:23:03 PM
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Alberta Neurofibromatosis Association
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looking for resources
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Topic: looking for resources (Read 4759 times)
grayum
Newbie
Posts: 2
looking for resources
«
on:
July 22, 2008, 10:01:55 PM »
Is there a support group in Calgary for people or parents with children that have NF?
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Cathy
Administrator
Newbie
Posts: 24
Re: looking for resources
«
Reply #1 on:
July 23, 2008, 10:58:49 AM »
We are here, please email me
cathy@albertanf.org
, and we will do what we can to help!!
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PamInnes
Administrator
Newbie
Posts: 5
Re: looking for resources
«
Reply #2 on:
July 23, 2008, 11:01:01 AM »
Quote from: grayum on July 22, 2008, 10:01:55 PM
Is there a support group in Calgary for people or parents with children that have NF?
Hi There ...feel free to contact us - 1866-939-2263 My name is Pam...We will be arranging for a meeting in calgary real soon...Pam Innes
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grayum
Newbie
Posts: 2
Re: looking for resources
«
Reply #3 on:
July 23, 2008, 12:33:15 PM »
Thank you. I also live in Huntington Hills.
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Cathy
Administrator
Newbie
Posts: 24
Re: looking for resources
«
Reply #4 on:
July 23, 2008, 06:44:51 PM »
Excellent, would you like to meet up??
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mrskosty
Newbie
Posts: 4
Re: looking for resources
«
Reply #5 on:
October 27, 2008, 07:27:15 PM »
We also live in Calgary I think a support group close to home would be a fantastic idea. I don't know about anyone else but there are times when we feel isolated with our child having NF. I think it would great to have people in Calgary be able to meet even if it's over coffee or something. Sure being online can be supportive but sometimes it's nice to be able to have face to face meetings. What do you think?/
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Cathy
Administrator
Newbie
Posts: 24
Re: looking for resources
«
Reply #6 on:
October 27, 2008, 07:40:48 PM »
Okay,
I am going to get a room booked for a support meeting for early November. I will let you know as soon as we have a time and place.
Cathy
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